= LhARA 4-nation PPI Meeting 28th June 2022 = == Notes == * Actions from last meeting. * DONE: Ken will create a Jiscmail mailing list for this group. * DONE: Ajit will make a page for meetings. * DONE: Ajit will add a section for funding opportunities. * DONE: Ajit to sort out wiki access for Charlotte. * DONE: Charlotte to investigate IOP outreach funding. * Everyone encouraged to make contact with CRUK lead nurses. * Charlotte has been in touch with Belfast. Still doing online meetings. Will try to go to the one in Sept. * Timescale of Sept to get in contact with lead nurses and Maggie Centres with a view to visiting to get input for the podcasts * HH: Cancer Vanguard (Marsden, UCL and Christie) can help with engagement. HH to find contact. * GJ: Should think about audience and engaging with patients. e.g. recent press release on treating glioblastomas with chemo and radiobiology. * AK: can include some of these points in the first podcasts. * CW: The scope for LhARA is very big. Need to ensure we get a consistent message across. * GJ: Maggies have groups that focus on a particular type of cancer. Should try to align with this. * IOP scheme. * AK: Is the deadline 1st July? * CP: Will check the date. There is an information session at 2pm today. * CP: Need to align the application with the Limitless campaign. * AK: Need to have a plan how to engage with diverse audiences. * CP: This can be done by choosing who to interview and the audiences. * KG: CRUK has diverse audience lists and we can tap into those audiences. * HH: Another resource is the CRUK newsletter that can be used. * GJ: IOP have had strong priorities to reach out to diverse audiences and have a broad definition of this. * CP: Can access audiences not necessarily interested in physics to show how physics can be useful. * CP: The key questions are in a Google doc and this can be shared once a full draft is ready. * Societal Engagement. * AK has looked at the application form. This can be used to put together a set of key points on what LhARA will achieve, how it will do this and when. * KG: Add to the application that the application is made with the assistance of patients and the public. * CW: Need to feed this back to the collaboration as it may impact the focus of the research. * HH: Need to bear in mind the NHIR guidelines for paying for public involvement. * Journaling. * AK made contact with an academic who runs journaling workshops. This could be developed into an engagement activity. * HH: Only certain people would go for this and this would exclude large numbers of people. * AK: Only so much can be done to mitigate this. * GJ: Maggies Centres already do something similar and they should be the focus of this kind of activity. == Actions == * HH to circulate contact for Cancer Vanguard. * CP to circulate first draft of IoP application.