| | 1 | = LhARA 4-nation PPI Meeting 28th June 2022 = |
| | 2 | |
| | 3 | == Notes == |
| | 4 | * Actions from last meeting. |
| | 5 | * DONE: Ken will create a Jiscmail mailing list for this group. |
| | 6 | * DONE: Ajit will make a page for meetings. |
| | 7 | * DONE: Ajit will add a section for funding opportunities. |
| | 8 | * DONE: Ajit to sort out wiki access for Charlotte. |
| | 9 | * DONE: Charlotte to investigate IOP outreach funding. |
| | 10 | * Everyone encouraged to make contact with CRUK lead nurses. |
| | 11 | * Charlotte has been in touch with Belfast. Still doing online meetings. Will try to go to the one in Sept. |
| | 12 | * Timescale of Sept to get in contact with lead nurses and Maggie Centres with a view to visiting to get input for the podcasts |
| | 13 | * HH: Cancer Vanguard (Marsden, UCL and Christie) can help with engagement. HH to find contact. |
| | 14 | * GJ: Should think about audience and engaging with patients. e.g. recent press release on treating glioblastomas with chemo and radiobiology. |
| | 15 | * AK: can include some of these points in the first podcasts. |
| | 16 | * CW: The scope for LhARA is very big. Need to ensure we get a consistent message across. |
| | 17 | * GJ: Maggies have groups that focus on a particular type of cancer. Should try to align with this. |
| | 18 | * IOP scheme. |
| | 19 | * AK: Is the deadline 1st July? |
| | 20 | * CP: Will check the date. There is an information session at 2pm today. |
| | 21 | * CP: Need to align the application with the Limitless campaign. |
| | 22 | * AK: Need to have a plan how to engage with diverse audiences. |
| | 23 | * CP: This can be done by choosing who to interview and the audiences. |
| | 24 | * KG: CRUK has diverse audience lists and we can tap into those audiences. |
| | 25 | * HH: Another resource is the CRUK newsletter that can be used. |
| | 26 | * GJ: IOP have had strong priorities to reach out to diverse audiences and have a broad definition of this. |
| | 27 | * CP: Can access audiences not necessarily interested in physics to show how physics can be useful. |
| | 28 | * CP: The key questions are in a Google doc and this can be shared once a full draft is ready. |
| | 29 | * Societal Engagement. |
| | 30 | * AK has looked at the application form. This can be used to put together a set of key points on what LhARA will achieve, how it will do this and when. |
| | 31 | * KG: Add to the application that the application is made with the assistance of patients and the public. |
| | 32 | * CW: Need to feed this back to the collaboration as it may impact the focus of the research. |
| | 33 | * HH: Need to bear in mind the NHIR guidelines for paying for public involvement. |
| | 34 | * Journaling. |
| | 35 | * AK made contact with an academic who runs journaling workshops. This could be developed into an engagement activity. |
| | 36 | * HH: Only certain people would go for this and this would exclude large numbers of people. |
| | 37 | * AK: Only so much can be done to mitigate this. |
| | 38 | * GJ: Maggies Centres already do something similar and they should be the focus of this kind of activity. |
| | 39 | |
| | 40 | == Actions == |
| | 41 | * HH to circulate contact for Cancer Vanguard. |
| | 42 | * CP to circulate first draft of IoP application. |
| | 43 | |
